Supporting Aussie Kids with Kabuki Syndrome Inc (SAKKS)
www in Tea Tree Gully

SAKKS—Supporting Aussie Kids with Kabuki Syndrome was established in 2004 by the parents of a child with Kabuki Syndrome who were faced with the isolation that can be associated with this rare syndrome. To contact one of our team members go to our “contact us” page at www.sakks.org - we look forward to hearing from you. Annual family days in each state and Nationwide Retreats bi-annually. Professional membership; a forum for professionals to aide in information sharing. Regular newsletters with the current activities of SAKKS. Story pages written by parents as well as photograph pages displaying many of our special members and their journey so far. Forum and stories page exclusively for siblings. Online forum/chat, a place for parents to make contact. Our mission is to support those affected by KABUKI SYNDROME by offering: Information, external links to genetics departments and research as well as links to medical information. Since its inception, SAKKS has grown into a Non Profit Incorporated Association with representatives in most states. (more).